EARLY ACCESS SCHEME SITES
29 November 2018
Families 4 Access has been working collaboratively with the NHS to support parents and carers, to the best of our ability, to obtain access to Epidiolex. It is important to note that this is the only CBMP available, apart from Sativex, in the UK.
The NHS have spoken to GW and they sent the following reply:
GW has immense sympathy with all patients and their families trying to deal with long-term treatment resistant epilepsy and the huge impact it has on so many lives. However, as a pharmaceutical company we cannot comment on, or suggest treatment or physician possibilities that might be seen to influence a patient’s treatment pathway. Each patient must use their treating physician as their key point of contact.
The list of UK Early Access Programme sites that has already been distributed within the NHS:
Great Ormond Street Hospital, London
Alder Hey Children’s Hospital, Liverpool
Birmingham Children’s Hospital
Addenbrookes Hospital, Cambridge
Manchester Children’s Hospital
The Great North Children’s Hospital, Newcastle
John Radcliffe Children’s Hospital, Oxford
Royal Preston Hospital
Leicester Royal Infirmary
Queens Medical Centre, Nottingham
Evelina Children’s Hospital, London
Sheffield ‘ Hospital
St Georges Hospital, London
Leeds General Infirmary
Bristol Children’s Hospital
Southampton General Hospital
Chelsea and Westminster Hospital, London
St Mary’s Hospital, London
University Hospital of Wales, Cardiff
Morriston Hospital, Swansea
Royal Belfast Hospital for Sick Children
Ninewells Hospital Dundee
Yorkhill Children’s Hospital, Glasgow
Edinburgh Children’s Hospital
Some jurisdictions are not part of the Early Access Programme there are a number of centres in London and so if you did decide to ask for a second opinion you could potentially ask to be referred to one of those centres for that second opinion (although the normal process is to get a second opinion from your current hospital trust). More information on getting a second opinion can be found here.
Families 4 Access continues to welcome feedback from parents on their findings of this process.
Families 4 Access Team